CdLS Connections
Navigating the challenges & triumphs of Cornelia de Lange Syndrome (CdLS) and where we explore, learn, and share everything related to CdLS. We will learn from families, clinicians, researchers & educators and those exploring new frontiers relevant to the CdLS community.
CdLS Connections
Ep.#13 - A Father's Story - Ken Pzalfgraf Shares his Journey with Tami and how CdLS Dads was born
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Canadian CdLS Foundation
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Episode 13
Ken Pfalzgraf and Tammi
Ken Pzalfgraf is the father of Tammi who passed away suddenly at the age of 18 in late 2024.Ken started a channel called CdLS Dads to share Tammi’s life and his reflections and learnings as a father. Ken is also an avid guitar builder, tree expert and all around involved citizen in his community.
We discuss everything from Tammi’s enthusiasm and connection to music, fatherhood, gastric duplicative cyst, seeing your child being dismissed, partnerships, the education system, communication and finding the potential in your child’s life.
Warning: Sensitive content for some, conversations of death and dying.
All music are original as played by Tami Pfalzgraf.
